SUSTAIN PROJECT

Independent guide to medical records and patient rights.

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Editorial policy

Updated: Found an error? See how we handle corrections.

Sources

Every statement of fact must be backed by a source listed on the same page. We give priority to the following, in this order:

  1. Primary sources: legislation on EUR-Lex and national law portals, court rulings, official statistics such as Eurostat.
  2. Official bodies: health ministries, national health portals, data protection authorities, the European Commission.
  3. Established medical references, such as MedlinePlus, the NHS website or DocCheck Flexikon, for explaining what terms mean.

We do not copy wording from other glossaries or documents; all explanations are written for this site. We do not host third-party documents. Any figures we give are shown with the date they relate to.

Use of AI tools

We use AI tools to assist with research, outlines, translation and proofreading. AI is not the author of record and does not determine what is true. Before a page is published, a person checks every fact against the cited source. We do not use AI to impersonate people, invent authors or reviewers, or hide how content was produced.

Medical review

When a page has been reviewed by a qualified medical professional, the page names that person, states their qualification and gives the date of the review. A page that does not name a reviewer has not been medically reviewed.

Updates

Each page shows when it was last updated and, once reviewed, when it was last checked. Pages about the law or statistics are checked whenever the underlying source changes, for example when Eurostat publishes new data or the law is amended.

Corrections

If you spot an error, let us know through the contact form. We correct factual errors as soon as they are confirmed, and we note significant corrections on the page.

Independence and money

The site is not funded by health insurers, pharmaceutical companies or providers. If we ever accept sponsorship, it will be labelled as described in the sponsored content policy and will never appear on the homepage or influence the explanations.

Planned topics

Guides in preparation, each to be published only once sourced and checked: reading a radiology (MRI or CT) report, the full blood count in detail, liver values, getting a second opinion, and patient access rules in further countries.